Since March and the start of Covid-19 pandemic in the UK, there has been a lot of concern about the use of Do Not Attempt Cardiopulmonary Resuscitation Orders (DNACPR / DNR / DNAR). In particular there is a concern that DNAR decisions are being made without involving people, and that they are being made because of people's age or because they are disabled (or both).

The Care Quality Commission is conducting a rapid review of DNAR decisions during Covid-19; this is for England. The investigations for this start in late November, and the CQC will publish the report on its findings in February or March 2020. (CQC Press Release). This means the timeframes for getting information together is quite short. 

However, from our work with people, community groups and frontline staff we think some DNAR decisions have risked people’s human rights, especially our rights to choice and involvement, to be treated equally, and sometimes their right to life. We think it is important the CQC hears evidence about why this is a human rights issue for people, what their experiences are, and how to stop this risk to people’s rights.

BIHR We are working with Learning Disability England and Turning Point to host two workshops to provide people with experience of DNAR during Covid-19 to share their experiences. This will help identify common concerns about the DNAR decisions.

  • One workshop will be for people who have experienced a DNAR; this could be themselves, or a family member or friend, someone you care for or community and self-led groups.
  • One workshop will be for staff working in health, care and social work who have seen the use of DNAR which they are concerned about.

These workshops will provide people with the opportunity to learn more about how human rights are relevant to their lives amd work, and especially care and treatment decisions. It will also provide the opporuintiy for people to share their expereinces of DNAR decisions which can be used to produce a human rights report on the use of DNAR decisions during Covid-19. We will provide this to all the people who take part in the workshops and to the CQC. It will be a public report which anyone can use.

Join our learning and research workshops

People, families, friends, carers, advocates and community groups: Learning Disability England will be hosting the online workshop for people, loved ones and community groups. The workshop will be 90 minutes, starting at 10am until 11.30am on 2 December 2020.

You can register here 

Staff working in health, care and social work providers and authorites: the date for this session will be confirmed shortly.