28 August 2020

The British Institute of Human Rights has released research findings on the impact of the Government’s response to the Covid-19 for people with care and support needs. This research, conducted with 230 people across England, Scotland and Wales, draws on the experiences of people accessing (or trying to access) services, their families and those that care about them, advocates, campaigners and community groups, as well as staff from health, care, social work, education and housing.

The full versions of the reports, submitted to Parliament’s Joint Committee on Human Rights are available here:

             

 

 

EASY READ versions available here.

           

The findings make for worrying reading, shining a spotlight on the realities of changes to law, policy and access to care and treatment for people with support needs. Almost 70% said their care and support had got worse during Covid-19, This was echoed by staff, with 82% telling us that it has been harder to uphold people’s human rights; over three quarters were not provided with clear training or information to uphold human rights during Covid-19, and almost 80% had no training or clear information about the legal changes under the Coronavirus Act.

The people who responded to our survey identified themselves as disabled or supporting/caring for a disabled person, most commonly citing learning disabilities, Autism, physical health issues or mental health issues. People’s care and support needs ranged from being met through support within their homes, in supported living, residential settings (e.g. care homes), and inpatient settings. 

 

Speaking about the release of research into the human rights impacts of the Government’s Covid-19 response, Sanchita Hosali, Director of the British Institute of Human Rights said:

 

“During Covid-19 we’ve heard the line “this virus does not discriminate” many times; our research shows that the reality of the government’s pandemic response has been very different. People with care and support needs are on the sharp end of decisions to change, restrict and deny access to medical treatments, as well as the very basic things that we all need to live well, especially in these most difficult of times.”


“Almost 1 in 10 people told us they had experienced pressure or use of Do Not Resuscitate Orders, 50% of staff in health, care and social work felt people were being discriminated against because of they have care and support needs, and more than 50% of advocates and community groups said there was no clarity about what laws were being used to enable these drastic cuts to people’s care.”


“These have been unprecedented times, but times in which people and their human rights must be front and centre. Human rights must guide the Covid-19 response, an essential warning system to show who is most at risk, and a framework for making the difficult decisions. Having supported over a 1000 people across the UK since April we know that too few know and advocate for their human rights as legal standards that not only should, but must, be abided by. Yet, this same work also shows that when people and staff use human rights in these difficult times, they can challenge the inequalities in service delivery, practices and policies that put people at risk.”


“There are calls for inquiries, and accountability must be ensured. But more than this, the pandemic has exposed further how poor law, policy and practice means some lives are deemed less worthy. It is not enough to look back and say that was wrong; we must look for change now and in the coming months; there must be immediate change. If we truly believe in dignity and respect, then the human rights principles of lawful, legitimate, proportionate and non-discriminatory must guide the response to, and recovery, from this pandemic.”